THE SPINAL MUSCULAR ATROPHY FOUNDATION
Recipient of 100% of Courageous Calla's net proceeds.
The Spinal Muscular Atrophy Foundation is a nonprofit organization that develops treatments for SMA, the leading genetic cause of death in young children. Since its inception, the Foundation has funded over $150 million in research and therapeutics development. The Foundation collaborates with leading academic medical centers, the federal government (DoD, NIH, CDC, FDA), and nearly every pharmaceutical company in the world including: Roche, Biogen, and Novartis.
When the SMA Foundation was established in 2003, there were no treatments for SMA. Due to the Foundation’s investments and drug discovery efforts, today there are two FDA-approved drugs. There are another five in advanced clinical development and several more in preclinical development.
Please visit http://smafoundation.org for more information.